Tallulah Willisdaughter of Al Bruce Willis Demi Moore and Demi Moore had been sharing details about how her father’s health was showing signs of failing years before he was diagnosed, but they didn’t think it was anything other than “Hollywood hearing loss.” In an article for Vogue, Willis explained how her father’s condition had worsened, he had gone through a period of believing he had lost interest in her, with a new wife and new children to share his time with. I wrote:
“I’ve known something was wrong for a long time. It started with a kind of vague unresponsiveness, which the family compensated for with Hollywood hearing loss: “Speak! Die Hard messed with my father’s ears.” Later the unresponsiveness widened, and I sometimes took it personally. He had two children with my stepmother, Emma Heming Willis, and I thought he had lost interest in me. Although that couldn’t be further from the truth However, my teenage brain tortured itself with some wrong math: I’m not pretty enough for my mom, I’m not caring enough for my dad.”
While addressing her mental health issues, which the 29-year-old has been battling for over a decade, she noted that she’s now in a much better place. However, she revealed that learning about her father’s condition hit her hard, and she recalled one moment in 2021 that was particularly devastating.
“I remember a moment when it hit me so painfully: I was at a wedding in the summer of 2021 on Martha’s Vineyard, and the father of the bride gave a poignant speech. Suddenly I realized I would never have that moment, my dad talking about me into adulthood at my wedding. It was devastating. I left the dinner table, walked out, and cried in the bushes.”
She went on to explain how hard it is to know who her father is now and who he was, while also trying not to lose sight of who she wants him to be. She said:
“He still knows who I am and it lights up when I walk into the room. I still bounce back and forth between the present and the past when I talk about Bruce: he, he was, he, it was.
Bruce Willis’ family research could provide a cure.
Bruce Willis’ retirement was the first time many people became aware of the actor’s medical issues, but since then there has been a lot of attention that has been paid to the FTD, and that includes a great deal of research that could help others with this condition in the future if it continues financing. Willis’ wife, Emma Hemming Willis, shared news that a clinical trial to find a cure for the brain disease is now over, something she couldn’t help but notice comes as a “blow” to the belief that it might have helped Bruce. I wrote:
“I read yesterday that Wave Life Sciences finished its clinical trial that can treat frontotemporal dementia (FTD) and amyotrophic lateral sclerosis (ALS). As I’m not sure it could have helped us here, it doesn’t really matter, it still sounds like a punch in the duct Digestive. Please keep this momentum going, build on the learning/results, and don’t give up on this loving community. Our family will continue to keep the faith and never give up hope.”